Good luck!!

Friday 03 September, 2010 - 9:03 pm

Good luck to all the riders doing the Mansfield 2 Skegness in the morning. Keep safe!! And thank you to everybody involved. A full update about the of the ride and the last two months will follow soon. (when George is back at school)

June Update.

Sunday 11 July, 2010 - 2:06 pm

George is doing really well, he is thriving at school, he has just had his school review, well, what can I say other than "what a little superstar" he is a very popular little boy he is loved by all his class mates and the teachers. He is confidantly using a whiteboard which is operated via switches, he is learning numbers and matching words with pictures, his understanding is fantastic and seems to pick things up really quickly, we are so proud of his achievements so far he just seems to be going from strength to strength.

His private physio with Linda (physio4kids) is still going well, were still using money that has been raised for George, we manage to keep it going about every 2 weeks, its £147 per session, were starting to run a bit low now, we have enough for about another 6 sessions.

Below: Some photos of George having his  private physio with Linda.

           

                  Above: Standing to help his hips and spine. 

               Below: Stretching his feet to correct the postion. 

            

  Next 3 Below: Linda is working on Georges head and trunk control

           

 

            

 

             

               Below: Finally George having physio on his arms.

                                 

We have moved no further with Georges case, although he won nothing has changed yet for us as a family, but our solicitors Irwin Mitchell  have it in hand and are fantastic, so once again thank you to everybody who has been raising money to keep George's physio going.

As you may have noticed George was in the Mansfield Chad again, we were getting very frustrated with still not having a indoor chair and  and yet again the system failed George, but by a miracle 3 weeks after the Chad article George's chair suddenly arrives, how strange (ha ha)

                      Below: George in the Mansfield Chad.

                            (sorry the picture not great)

                        

We finally have George's indoor seat, we had it for 3 weeks, it sat unused as our next problem was that no one could get to set it up for George (another battle) Anyway its all sorted and George loves it,

        Below: George in his new indoor seat, the Jenx Junior 1.

         

Its great for all occassions as it can be at any height so Ebonie can play at his level with him or he can sit at the table for dinner, he seems to be very comfy in it.

Finally George has his appointment at Derby Children Hospital in August regards finding a way to stop the secreations, its starting to cause other problems now, his nose is becoming disfigured, which in time could cause airway difficulties, he is also having more botox in August to help relax his feet to stop them from twisting, he has started wearing night time splints which he is ok with, but it has been a bit difficult during the hot weather as they make him very hot, he only has about 4 hours out of 24 when he doesn't wear the splints, which is awful for me having to put them on. Its feels cruel but I think the problems which could occur from not wearing them is far worse.

George breaks up from school 22nd July for over 6 weeks, I would love to say Im looking forward to it, but the reality is that George is far better at school were he perminantly has something to do he gets very bored at home, what we can do at home is very limited and its extremly hard work especially when Im on my own its almost impossable, I have respite and help planned but its just not enough, anyway no point moaning now, lets hope for good weather so at least we can be on the garden.

 

Well Done Neil!!

Sunday 27 June, 2010 - 7:34 pm

Amazing effort from Neil Mckie today! (shame the same can't be said about England Football Team) Anyway... He pushed a shopping trolley 13 and a half miles in 30 degress temperture.. Wow!

                       Below: Neil set off on his mission!

 

             

Neil set off with his shopping trolley to raise money for George's Army and Help the Heroes.

Neil told us it was a nightmare the brakes kept locking after about 2 miles and as per usual the trolley always wanted to go to the left!!

Neil managed a time of 2hrs 39mins and 6 seconds, unbelievable to say the least and there were plently of runners still behind him...

                                  Below: He's made it!!

 

            

                              Below: Who's the Hero???

             

Well done Neil Mckie!! From Team Eden-Taylor...

 

The Training Has Started..

Sunday 20 June, 2010 - 4:55 pm

The training has started for the Mansfield 2 Skegness bike ride in September, we get together every Wednesday night for a ride out doing around 15-20 miles in Sherwood Pines, Thieves Wood etc and then once a month out in Peak District.

Check out upcoming events for more details.

Below: 2 Pictures of some of the riders out training round Ladybower Dam for the bike ride in September.

            

           The roads should be a lot better on the way to Skegness.

                     

Just How I felt Stall Dates.

Saturday 12 June, 2010 - 9:28 am

"Just How I Felt" stall dates so far for 2010:

Sunday 13th June, Neither Edge Farmer Market, Sheffield.

Saturday 19th/20th June, Arnold Show, Nottingham.

Saturday 26th June, Woodhouse Carnival, Yeoman Hill Park.

Sunday 15th August, Lowedges Show, Sheffield.

Sunday 26th Sept, Neither Edge Farmer Market, Sheffield.

Saturday 16th October, Ravenshead Village Hall, Mansfield.

Sunday 5 December, Neither Edge Farmer Market, Sheffield.

Once again Thank You so much to Margrett and everybody involved..

If you would like any more details regarding any of the above dates please contact me though the email link..